by adminpia | Jul 1, 2024 | Guidelines
What is a rare disease (RD)? It might seem to be self-evident, but “rare disease” has a specific definition. The US Food and Drug Administration defines an RD as one that affects fewer than 200,000 people in the United States. As few as 5 people, or as many as...
by adminpia | May 2, 2024 | Guidelines
Most mothers whose babies have been discharged from the NICU struggle to reconcile with what should have been one of the happiest moments of their lives i.e. the joy of a new baby with that of trauma, resuscitation, life support equipment, strings ad gadgets attached...
